DEFINE COLLABORATORY PRO

PROs are also used to measure risks and benefits of treatments. HRQOL includes the patient’s report of the way a disease or its treatment affects physical, emotional and social well-being.

Health-related quality of life (HRQOL) is broadly defined as an individual’s or a group’s perceived mental and physical health over time.

DEFINE COLLABORATORY PRO

PRO data are used to inform and guide patient-centered care, clinical decision-making, and health policy decisions and are an important component in learning healthcare systems.

” Patient-reported outcomes typically include information about health-related quality of life (HRQOL), symptoms, function, satisfaction with care or symptoms, adherence to prescribed medications or other therapy, and perceived value of treatment. Food and Drug Administration (FDA) defines a patient-reported outcome (PRO) as “any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else. These uses should be transparent to patients, clinicians, researchers, and other stakeholders and may help engage patients in their own health care over time and ultimately inform and improve evidence-based patient care. When PRO collection is aligned with clinical care, the information collected can be used in real time to triage patients, for quality monitoring, to trigger interventions and education, or for research. To incorporate PRO data collection in the clinical process, providers must be engaged, and the process used to collect PROs must improve clinical productivity and not create undue burdens on clinicians or patients.

Interpreting Scores from PRO Instruments.

National Institutes of Health-sponsored PRO Measurement Systems.

Measuring PROs: Instruments, Item Banks & Devices.

Defining Patient-Reported Outcomes (PROs).

PRO data are used to inform and guide patient-centered care as well as clinical and health policy decision-making. For this reason, recording the reporter of the information can be an important facet of a PRO dataset. ” Many argue that a key feature of PRO data is that they are not interpreted by a clinician or any other person although this may be the ideal scenario, there are times when documented PRO data may incorporate interpretation by a clinician, caregiver, other person. Patient-reported outcomes (PROs) are defined as “any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.

Laura Lee Johnson, PhD (National Center for Complementary & Alternative Medicine).

William Riley, PhD (National Cancer Institute).

Flynn, PhD (Medical College of Wisconsin)

Amy Abernethy, MD, PhD (Duke University).

Define collaboratory